The death of baby Indi Gregory yesterday has been called an unjust violation of the right of parents to make medical choices for their children.
The critically ill baby who was at the centre of a legal argument over her treatment died Monday after having her breathing tube removed.
Judges in several High Court and Court of Appeal cases ruled the eight-month-old should die but last week Italy stepped in and made her a citizen in a last-minute legal bid to bring her to a Rome hospital for treatment.
But on Friday that attempt failed.
She was moved from the Queen’s Medical Centre in Nottingham (QMC) to a hospice where she died in the early hours of today in her mother’s arms.
Her father Dean said: “The NHS and the courts not only took away her chance to live a longer life, but they also took away Indi’s dignity to pass away in the family home where she belonged”.
Commenting, the Anscombe Bioethics Centre said the case, “as so many before (cf. the cases of Alfie Evans, Charlie Gard, and many others) involves a violation of the right and prerogative of parents to make medical choices for their children”.
“To remove this right and responsibility is an act of injustice to both parents and children until and unless the former can be shown to be both unreasonable and harmful to their child”.